Welcome to Bexi's Personal Page
After countless doctors' visits over a decade, I finally arrived at a diagnosis of Sjogren's in 2018. I had to push my functional medicine doctor to test for it. When the tests came back positive and I realized I had Sjogren's I had so many questions for him. Did I need to see a rheumatologist? How could I address my dry eyes and dry mouth? Was Sjogren's a life-threatening or life-altering disease? Was it systemic? He laughed at my concern and said, "Sjogren's is just dry eyes and dry mouth, you don't need to worry. If you'd like to see a rheumatologist, you can, but I don't see a need for it." He had no suggestions for how to deal with my dry eyes (other than to use eye drops) and dry mouth.
Having essentially diagnosed myself, I was skeptical of his optimism and chose to do my own research. The first resource I came across was the Sjogren's Foundation website, which had a plethora of information on how Sjogren's is not "just dry eyes and dry mouth", but is a common (though rarely diagnosed), serious and systemic autoimmune disease that is three times as common as lupus and multiple sclerosis and just as common as rheumatoid arthritis. The list of organ systems it affects goes far beyond eyes and mouth; Sjogren's affects the lungs, heart, GI tract, kidneys, skin, and nervous system, among many other organs and their systems. Were it not for the Sjogren's Foundation and their efforts to support, educate and connect patients with resources to help them manage their health and advocate for the required medications (the hydroxychloroquine shortage in 2020) and medical care, I would not be as functional as I am today.
Please help me support the Sjogren's Foundation by making a donation or by joining my team and participating in the Virtual Walk. Either way, your support is incredibly meaningful and much appreciated as it impacts the quality of Sjogren's patients' lives, especially mine.
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