That's what I said in June of 2021.  Like most people who are given the diagnosis of Sjögren’s Syndrome (pronounced “show-grins”), I’d never heard of the disease before.  Sjögren’s is the second most prevalent rheumatic autoimmune disease yet it remains largely unknown and is often undiagnosed or misdiagnosed. 

I was told I had Primary Sjögren’s Syndrome or PSS because instead of the usual dry eye and mouth that most people get, I had fluid in my chest and around my lungs and heart, neuropathy in my feet, incredible fatigue, and broad inflammation in my joints.  It was quite serious.

I am lucky, however, to live in a community where there is help, access to good medical care, and I can afford the medication I take several times a day to keep the disease manageable.  

But it will never go away, and there is no cure. And like many diseases that primarily affect women, there is a HUGE need for more research and awareness. That’s why I’m doing this fundraiser, and I hope you can help me.  

Donating through the website is simple, fast and totally secure and is the most efficient way to support the fundraiser.  If you can’t support monetarily, please consider helping to spread the word to others about Sjögren’s Syndrome and this fundraiser. 

Thank you in advance for your support. 

Together we can make a difference and impact the future of Sjögren's!