Welcome to Cynthia's Page
Hi Friends and Family - Please join me in my efforts to support the Sjögren's Foundation and helping me reach my goal by making a donation today on this fast and secure site! Together we can make a difference and impact the future of Sjögren's!
Here is my story and How I'm Stronger than Sjögren's Today because I keep fighting and I won't give up:
I'm Cynthia 63 and was diagnosed at 46.
My most difficult symptoms are pericarditis, cryoglobulinemic Vasculitits, Mgus, anemia, glomerulonephritis, neuropathy and high levels of inflammation. I suffered over 10 years before finding the right medical team. I was diagnosed with acute chronic kidney failure. I never leave my home without water, lip balm, eye drops, lotion and brief description of my medical condition. After five years of my diagnosis, hospitals became my second residence and my arms were looking like a pincushion. Visits to the lab and needle sticks are not as painful because I agreed to get a port. I struggled with the meaning of my lab results like IgG, IgA, IgM and component 4. Realizing I can’t be as active as I used to has been tough. I most often take notes or record my many specialist doctors’ conversations became an important tool for me because brain fog episodes disrupt my comprehension. My team of doctors saved my life after almost 1 year receiving infusion treatments like Solores, ocreluzumab, rituxumab, and cyclophosphamide. I’m confident, feeling empowered and thankful to be a member with Conquering Sjogren’s support group/ subscription. I’m determined to remain gainfully employed for 30 years. When you meet me you are looking at God’s miracle.
Thank you in advance for your support, hearing my story and learning about Sjögren's!
If you think this page contains objectionable content, please inform the system administrator.